Building better support for people with disability at end of life - Palliative Care Week 2022

Posted May 26, 2022

Li-Ve Tasmania’s Laura Nichols and Karen Lovering, from the Healthy dying for people with disability (HD4PWD) project, presented at Palliative Care Week events around Tasmania this week. They talked about the Communicating for end of life toolkit that the project team co-designed in collaboration with health providers, people with intellectual disability, and their family and carers.

‘People with intellectual disability need to be included in all decisions about their palliative care,’ says Laura. ‘It’s their right to have their wishes heard and respected, and to receive the best possible end-of-life care – just like anybody else.’

The toolkit supports great communication between a person with intellectual disability and their team. Great communication is important to ensure safe, coordinated and continuous end-of-life care.

The Communicating for end of life toolkit is free for anyone to download. On the HD4PWD webpage, you’ll also find resources, like posters and factsheets, frequently asked questions, and useful links.

Find out more or get in touch with the healthy dying for people with disability team by visiting livetasmania.org/hd4pwd

The toolkit is funded by the Department of Social Services Information Linkages and Capacity Building (ILC) program.